Conversation with Molly

July 16, 2020

Molly tells us the story of her son Easton and his diagnosis of Optic Pathway Glioma and Neurofibromatosis (NF1).  Easton and his family has been through a lot, but he keeps positive and proudly shows off his scars.

 

Keywords: g-tube, Ronald McDonald House

Conversation with Lori - ALL

June 07, 2020

Lori's son, Max, finished treatment for ALL in April 2019.  Lori has a ton of great information in her conversation.  Topics covered: momcology, Fit Like a CK Mother; Orgain; Alex's Lemonade Stand

Conversation with Rebecca- ALL

June 04, 2020

Rebecca tells us the story of her son's diagnosis with ALL.  Check out his cool party! https://www.azcentral.com/story/news/nation/2020/04/16/new-hampshire-4-year-old-gets-car-parade-after-beating-cancer/5144045002/

Conversation with Parvathy

June 06, 2020

Parvathy tells us the story of her kids, Ira and Yash.  Ira passed away in 2018 from a genetic disorder and Yash has been through treatment.

Conversation with Jennifer - medulloblastoma

May 20, 2020

Jennifer's son is 14 now and was diagnosed with medulloblastoma.  He finished treatment in February 2020, just a few months ago.  He took part in a clinical trial at St Jude in Memphis Tennessee.  He had to endure surgery, chemo and radiation.  We talk a bit about radiation in this conversation, so please check the notes to see the spiderman mask that we refer to.  In her tips and tricks she mentions smell sticks and we have put a link to amazon if this would be helpful for your family. 

Please note: I mistakenly said her son is 11, he is actually 14.
Picture of Radiation Mask
Smell Sticks

Conversation with Leila - ALL

May 20, 2020

In 2018, Leila's daughter was diagnosed with acute lymphoblastic leukemia when she was 10 years old.  She discusses child life, Drums, Girls + Dangerous Pie by Jordan Sonnenblick.  She also talks about Bone Marrow Transplant and Graft V Host Disease (GVHD).

Two of a Kind: Joelle and Kristy

May 03, 2020

This is an Kristy and Joelle.  Their kids were diagnosed with leukemia and rhabdomyosarcoma (respectively) around the same time in 2018.  Please be sure to listen to the end where we talk about silver linings.  They have started a company called Two of a Kind and they sell beautiful earrings.  For each pair sold, one is donated to a caregiver.


2ofa.kind-Instagram

https://www.facebook.com/2OfAKindEarrings/
www.2ofakindearrings.com
 

Keywords: Covid, caregivers, T-cell leukemia, rhabdomyosarcoma, Singapore, bring sheets and blankets, talisman, momcology, HopeKids,

Karly's Capstone Project

May 07, 2020

This is an interview with Karly.  Karly is just about to graduate from High School.  She is part of the Silver Creek Leadership Academy and is required to do a capstone project.  Karly’s project is called You’ve got a friend in me.  She has spent this year planning and executing her project.  I am very lucky to be Karly’s mentor and I am so proud of all that she accomplished this year.  I hope you enjoy it.

Keywords: cancer, slca, silver creek, volunteer

Brittny and Mac's Story

May 04, 2020

Brittny shares her son, Mac's story.  He is 7  now but was diagnosed with AML at 8 mos.  At 3 years old, Brittny and her husband found out that Mac had Diffuse Midline Glioma.  They just wrote an amazing book called: This is hard, but you can do it and there is a kickstarter campaign until May 13, 2020.  

Topics covered: Chemo duck, Broviac, AML, www.teammac2013.com

Sha Desper and Josiah's Story

June 10, 2019

Sha's son, Josiah is fighting ALL.  Listen as she tells us about his treatment, tips and tricks and silver linings.  She also tells us about port covers, which was new to me!!  Click here to see it.

Conversation with Jordan Yanch

May 28, 2019

Jordan tells us the story of her son, Zac.  He was diagnosed with Osteosarcoma in 2017 and finished chemo in March 2018.  She shares some great information about rotationplasty and some great ways to talk about cancer with kids.  

Conversation with Trisha Fullmer

April 24, 2019

Trisha tells us about Simon's treatment and recovery from neuroblastoma.  

Fit Like A Mother: Interview with Sarah John

April 05, 2019

Sarah John is a Pilates trained, whole body wellness teacher, specializing in training moms throughout motherhood.  A lifelong runner and wellness enthusiast, Sarah came to yoga and Pilates to balance out her running and gym training. She loved them both instantly and sought certifications in Pilates to understand more about how to move her body, how to apply the science of Pilates to running and other forms of exercise and movement and how to expand her own practice.  However, it was not until she had her first daughter and she left her corporate life as a lawyer that teaching became her focus.  A friend who owned a baby product store in the town she lived asked if she could create some programs for moms to be.  With that entry into the field, Sarah launched Go, Mama Go(tm) stroller classes and opened her studio, Body Baby Fitness.  Sarah built her studio to allow for moms to workout with their children in the same beautiful, open space.  In response to less than adequate child care at gyms and her own struggle to figure out how to workout once she was a mom, she believed that this approach created the best of several worlds: intense training for moms with a focus on getting their core back in shape, simultaneous playdate time for children and an immediate community of mom peers.  It was a hit.   Sarah closed her studio when her husband's job moved them from their idyllic seaside town in Massachusetts to Texas. Her clients wanted to keep training with her so she began training them virtually via Skype and Facetime long before virtual training was a "thing".   

During her time in Texas, three friends from different parts of her life had children diagnosed with cancer bringing the number to four friends total.  Sarah witnessed the toll it took on her dear friend who lived across the street when her then two year old child was diagnosed, the same age as Sarah's youngest.  In response to her wellness posts, these moms would talk about how far they were from the fit, well person they were pre-diagnosis.  Moved again for her husband's work, Sarah continued to explore ways to support her friends through their child’s journey.  One day, on a run, she was struck with the idea to provide these moms and their circle of friends the virtual wellness training she did for free, giving them an opportunity to give themselves self care wherever they were - in the hospital, at home, at a Ronald McDonald house or hotel.   Although the concept did have a physical purpose, Sarah knew scientific and observed evidence showed a deep connection between physical exercise and emotional improvement, particularly in regards to anxiety, PTSD, exhaustion, and depression, all of which her friends were experiencing in response to their children's fight.  Fit Like A Mother (for little cancer warriors) was born.  What she expected would be for about 30-35 moms has grown to over 500 in its first year solely by word of mouth.  She is informed by her years teaching self-esteem and confidence building to girls based on extensive research she had conducted as an undergraduate.  Fit Like A Mother (its current name) is the first in the field of pediatric cancer to provide targeted, globally accessible exercise for the moms of cancer patients and it continues to grow and gain interest from the field.  It comes authentically from her and is purely a gift from her heart for these mamas.

Outside of her work, Sarah is grounded and motivated by her wonderful husband and children, enjoying time with them in the great outdoors or snuggled up playing or doing homework.  She coaches Girls On The Run, provides endurance and conditioning training to one daughter's soccer team, runs with her hubby when they can and loves a good sunset and a glass of vino.  

Podcast with Heather Rege

November 13, 2018

Listen to Heather tell Allison about her family's experience with cancer.

Justin Wilford of Maxlove Project

September 25, 2018

Justin Wilford talks about his son's cancer and their family's journey.

http://morethan4.libsyn.com/the-more-than-4-cast-justin-wilford

The More Than 4 Cast - Sarah Kleinhans

June 27, 2018

Sarah Kleinhans' son, Addison was diagnosed with ALL in 2011.  Listen to hear how Sarah and her family worked through a long treatment.  

http://morethan4.libsyn.com/interview-with-sarah-kleinhans

The More Than 4 Cast - Shannon Benish - Episode 1

April 25, 2018

Mom and Author, Shannon Benish talks to Allison about her family's experience when her daughter was diagnosed with cancer.  She tells us things she has learned along the way as well as some silver linings that have resulted.

The More Than 4 Cast - Promo

April 25, 2018

BraveHoods presents The More Than 4 Cast - a podcast of stories and hope for parents of kids with cancer.  We will talk to moms and dads whose kids have fought cancer.  We will hear stories, get tips and tricks and hear about silver linings.

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